Cancer drug for some, abandonment for others

Walked home from a clinical study check-in, grateful for an eyewateringly expensive study drug in my daypack. The study, funded by the Department of Defense, promises to save many millions of dollars in cancer care. The contrast with last week’s abrupt shutdown of USAID-funded research feels deeply unjust. Thousands have been left with experimental drugs and devices in their bodies, without access to monitoring or care.

Getting my shots

It was almost balmy weather for January in Minnesota (in the thirties) as I walked to the University for a consultation and medication top-ups (injections). With temperatures expected to drop below zero for the next few days, I’m anticipating a period of hibernation. This appointment was therefore well timed.

Monthly Routine

Every four weeks, I undergo testing for a clinical trial. Today’s lineup: lab tests and two full-body scans. The scans show my tumors aren’t growing or spreading, thanks to a promising new therapy. While there’s no cure, we’ve successfully managed this for eight years. I’m grateful.

A Matter of Dignity

It was my annual Medicare physical, a routine appointment that didn’t amount to much. Since a former president bragged about ‘acing’ the cognitive test, claiming it’s incredibly difficult, I’ve opted out. The test is actually quite simple, but the idea of potentially making a mistake on a test he passed with flying colors is unsettling.

Data-Driven Healthcare

Tomorrow, as I do every four weeks, I meet with my oncologist. Rather than speculating about lab results, I like to cycle over to the University the previous day for a blood draw. Results then trickle in to an app on my phone over the next two hours.

Categorized as Cancer

Boxed In

Nursing a cold, I didn’t stray far from a box of Kleenex.

Categorized as Health

Paying the Price of Travel

Downsides of long-haul travel are jet-lag, possibly layered on a cold or worse. Today I failed a COVID test, which is some consolation.

View from Ford Bridge

After oncology appointments scheduled around our upcoming trip to England, I continued my bike ride. At Ford Bridge, I’m looking at the remnants of a Ford Motor Company plant: Ford Hydroelectric Plant and Ford Steam Plant. Up on the bluffs, a new brownfield development is underway, featuring most of the elements of a 15-minute community,…… Continue reading View from Ford Bridge

8 Weeks On, 8 Weeks Off

The clinical trial I’m participating in alternates between two treatments, 8 weeks at a time. Seville oranges are discouraged during one of the treatments, one of two ingredients in my go-to marmalade. For the next 8 weeks I can enjoy marmalade and I won’t have to make potentially misunderstood inquiries about the formulation of the…… Continue reading 8 Weeks On, 8 Weeks Off

Categorized as Cancer, UK

Turning the Tables on Tumor

Came home from a medical appointment with a two-month supply of Enzalutamide costing about the same as a small Tesla. I’d never buy a Tesla, so the comparison is moot; besides, the study is paying. I alternate between this for two months then the study drug for two months — rinse, repeat. So far, the…… Continue reading Turning the Tables on Tumor

Categorized as Cancer