It’s the classic snowbird’s lament: a cluster of medical appointments for us both immediately after returning to winter. Walked over to the U for labs, then headed to nearby Kinzō for some tonkotsu udon. Lab results trickled in as I slurped my comfort food.
Category: Cancer
Drifting ice, drifting anxieties
The clouds seemed to mimic the icy Mississippi as I walked from a lab draw at the U (in the distance) to our co-op for Christmas ingredients. My phone buzzed occasionally, creating short-lived anxiety as more lab results became available.
After 10 years the can is still kickable
Following appointments at the U this morning, I checked their app periodically while cycling downriver. The news was great: my tumor marker is now “in the weeds,” confirming recent scans that show the tumors are no longer visible. I used the app to communicate with the care team, then returned to the U for a quarterly injection they’d missed. I’ll have just one more infusion in October, skipping the two final planned sessions. I’m grateful.
Planning on a bunch more birthdays
Cycled over to the U for treatment and scans, taking care not to collide with half-awake students. On the way back, the students streaming out of lectures seemed more animated.
Kicking the can down the road
Cycled over to the university for Pluvicto infusion #2. I’m grateful I can keep buying time with new treatments that weren’t available when I was first diagnosed. For the next few days, I’ll try to maintain a safe distance from everyone, including Dwight—a distance about the wheelbase of a bicycle. I’ll show the card I’m holding if I set off a radiation detector.
My atomic bike tour
The word “Atomic” inspired a less-traveled cycle route via Atomic Tattoo, Atomic Data, and Atomic Recycling. For now, I have to stay a bike’s-length from people while excess radioactivity works its way out of my system.
Treatment cycle 1
Walked over to the U for my first Pluvicto infusion, a radiopharmaceutical that selectively delivers radiation to cancer cells in my lymph nodes. The journey continues, with therapies that were not available ten years ago when we first became suspicious something was going on. I’m grateful for every day.
A fork in the road, the journey continues
All packed for a quick getaway tomorrow. Today I was taken off the clinical trial because it’s no longer working for me. My oncologist strongly encouraged me to go ahead with my trip: another scan and options await my return. I’ll be bearing Japanese Kit Kats from a cluttered Donki for the care team.
Filling time between scans
To fill time between body scans at the U, I peeked into “221B Baker Street” (the U has the world’s largest collection of Sherlock Holmes artifacts), explored an exhibit on Minnesota women architects, and enjoyed uplifting piano-playing at Coffman Union. Earlier, while waiting for my first scan, a pianist played funereal hymns, including “Abide with Me.”
Cancer drug for some, abandonment for others
Walked home from a clinical study check-in, grateful for an eyewateringly expensive study drug in my daypack. The study, funded by the Department of Defense, promises to save many millions of dollars in cancer care. The contrast with last week’s abrupt shutdown of USAID-funded research feels deeply unjust. Thousands have been left with experimental drugs and devices in their bodies, without access to monitoring or care.